Friday 30th Nov

18:30 until 21:30
18

Join CRDN’s launch event of RAREfest18! An evening featuring powerful rare stories and talent expressed through musical performances and dance.

Entry TICKETS ARE FREE!

This event is seated so tickets must be booked in advance. 

BOOK YOUR FREE PLACE HERE SOON

FRIDAY EVENING’s LINEUP

ALASTAIR KENT, OBE FRSA

 RAREfest18 welcome address

Alastair was the executive director of Genetic Alliance UK (the UK alliance of over 200 patient support groups for patients and families with rare and genetic disorders) for almost 25 years.

Read more…

Abbi Brown

Nuns, Prayers and Growing Up Rare:
Rare Disease and Other Funny Stories

Growing up with a rare disease isn’t always easy, but it does make for some great anecdotes. CRDN founding member and Cambridge graduate Abbi Brown tells some of her favourites

Read more…

Michael McGRATH

Ice, Slice & Adrenalin

After being diagnosed with the muscle wasting disease Muscular Dystrophy (MD) aged 18yrs in 1984, Michael made history 20 years later by becoming the first disabled person to lead expeditions to the North and South Poles.

Read more…

THE SCHEDULE

Doors open

18:30

Drinks and socialising

18:30 – 19:00

The Guildhall small hall

Welcome Address from Alastair Kent, OBE

19:00

Speaker – Abbi Brown

Nuns, Prayers and Growing Up Rare: Rare Disease and Other Funny Stories

19:15

Performance – CRDN’s Unique Feet rare dancers

A collaboration with award-winning Wayne McGregor’s Dance Company

19.35

Speaker – Michael McGrath

Ice, slice & adrenalin

19:50

Interval

20:10

Speaker – News coming soon

Presentation  TBC

20:30

Closing remarks

20:50

Drinks and socialising

21:00 – 21:30

The Guildhall small hall

Close

21:30

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