Children’s & families
In 2015 we formed a small dance group for children living with a range of rare conditions from the Cambridge area. Choreographers from professional contemporary dance group, Collective Arts Movement, helped the children to express themselves in whatever way they felt comfortable and able. Their inaugural performance was at the Sobi charity ball in April 2016, and it was a great opportunity for these little superstars to shine! All proceeds from the ball supported CRDN, the Haemophilia Society and Rare Disease UK, and the hosts, Sobi, are a pharmaceutical company focusing on rare diseases, so the whole night was a brilliant celebration of the rare disease community.
We often think of rare diseases in medical terms and it’s easy to lose sight of the children and families at the heart of our work. The kids rehearsed together weekly for several months, and over that time a lovely sense of community has emerged as the children and their families built friendships and supported each other.
We received this beautiful letter of thanks from the parents of the Unique Feet children.
Firstly we just wanted to write and express a big thank you to all at CRDN for allowing Jo and Ekida to develop the concept of Unique Feet and for the support and investment you have given to the project.
In autumn 2017 we were delighted to be funded by a People’s Health Trust grant using money raised by
The group began by meeting weekly for yoga sessions with Emily, our trusted Unique Feet supporter who has worked with us from its first steps in 2016.
So why yoga?
As Emily explains, yoga helps children to develop greater body awareness, improves attention span, supports them to develop muscle tone, flexibility, circulation
The better weather has allowed the group to move on to outdoor activities now and they’ve been taking part in the weekly You Can bike Too project. This is a brilliant award-winning, all-ability cycling project delivered at Milton Country Park and the only project of its kind in Cambridge. There is a wide range of bikes to suit individuals or groups specially adapted bikes to help those with disabilities to take to their wheels and to support others to build confidence in riding. In the summer the group will take part in horse-riding, enjoy a trip to a water park and a picnic in the park.
Siblings joined us for a Christmas Party and for bouncing fun at Xtreme 360 trampoline park at Easter and there are horse-riding lessons planned for the summer term. So much fun to look forward too! It’s wonderful to see friendships and community developing amongst our local families living with rare conditions who can often feel isolated. The group is a wide mix of children of different ages and all with different conditions.
Live in Cambridgeshire and what to get involved? Contact Jo for more info.