Support Us

Annual Summit Sponsorship Options

Cambridge Rare Disease Network is pleased to offer a range of sponsorship packages for it’s annual summit. If you would like to speak to a member of our team regarding specific sponsorship requests then please contact Kay at kay@camraredisease.org

Why support CRDN?

  • Contribute to global efforts in rare disease research
  • Raise your profile in the rare disease community among
    delegates and research professionals
  • Promote your presence to over 200 delegates at our
    annual international summit
  • Increase social media presence and coverage

For more information on the sponsorship opportunities available please click below to download our #CRDN2017 package

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Fundraising for CRDN

We have several fundraising activities taking place thanks to our courageous and determined supporters.

4 June 2017 – Six incredible ladies are parachute jumping for CRDN. Inspired by Helena Baker, a previous speaker at our Rare Nursing event 2016, who has a rare disease and is recovering from a recent lower leg amputation, they will all be jumping and we’ll be there to cheer Helena and her crew on. Read her story and help them raise their £1800 sponsorship target

5-6 August 2017 – Chris Cawthorn from Cambridge Trailfinders is running the 100 mile North Downs Way for CRDN. An incredible feat from a dedicated runner who often runs the 18 miles to work and back! Read Chris’s story and help him reach his £1000 target

 


Join the Cambridge Rare Disease Network on Jeans for Genes Day

Apply for your free fundraising pack to support Cambridge Rare Disease Network and Genetic Disorders UK here

Did you know that half a million children in the UK are affected by a life-altering genetic disorder?  Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 22nd September, and to achieve an even greater impact, GDUK are partnering with smaller genetic disorder charities like CRDN to help them spread the word, and in return, split the proceeds to support the work of both charities.

Would your school or workplace be keen on registering to participate in this year’s Jeans for Genes Day to support us? We’d be absolutely delighted!!

To take part you need to sign up on the official GDUK page, choosing Cambridge Rare Disease Network as your partner from the drop-down list, and encourage your pupils or colleagues to wear jeans on the day in exchange for a small personal donation. Extra fundraising initiatives, such as bake sales or quizzes, are more than welcome!

Once you transfer the proceeds to GDUK, they will then transfer half of the proceeds to us for all organisations that have supported us.

*Exception – If your organisation has taken part on Jeans for Genes Day in the last three years you can still take part, but all of the money raised will go to GDUK.

As hundreds of schools and workplaces take part each year, this is a great way for your pupils and colleagues to feel like an important part of the wider movement to end genetic disorders. For schools, it is also an opportunity for you to educate your students about the science of genetics, to promote equality of people affected by rare conditions, and to highlight the importance of charity and social responsibility.

The of the money donated to us on Jeans for Genes Day will be used to help CRDN develop a regional network and forum of Rare Disease patients and their advocates and families, to support our Unique Feet children and young people’s social group and to run exceptional Rare Disease educational and networking events. Raising the profile of Rare conditions and valuing, celebrating and supporting those living with Rare Disease through life’s journey could be something you and your team or school could help us make this happen. If you have any questions about CRDN or Jeans for Genes Day, please don’t hesitate to get in touch  on info@camraredisease.org


Make a Donation

If you’d like to give a one off or even a regular donation you can do so through our Just Giving page. Thanks to all of the lovely people who have given donations recently to support activities for our Unique Feet rare dance and social group

 


We also have an EasyFundraising Page

You can use the EasyFundraising app and donation reminder to buy travel, goods and services online on laptops or mobiles. It’s that simple……money for nothing! If you’d like to give while you spend and help CRDN to widen its scope and continue evolve with new projects and activities please register here

Cambridge Rare Disease Network Fundraising Ideas.clipular

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