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April 2015

Parent entrepreneurship: when parents start companies to cure their child

April 2, 2015 @ 5:00 pm - 8:00 pm
Cambridge Judge Business School, Trumpington Street
Cambridge, CB21AG United Kingdom

The launch of the Cambridge Rare Disease Network is a discussion on parent entrepreneurship: when parents start companies to cure their child. Confirmed speakers are: Mr Alastair Kent OBE, Director of Genetic Alliance UK; Dr Nick Sireau, Founder of AKU Society and Findacure; Ms Kay Parkinson, Founder of ASUK Society; Dr Will Evans, Trustee of Niemann-Pick Disease Group; Dr Cesare Spadoni, Founder of aPODD Foundation. The event is kindly supported by Genetic Disorders UK, Findacure, Utah Rare, Cambridge Judge Business…

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June 2015

Rare disease diagnostics: bringing genomics to the clinic

June 25, 2015 @ 6:00 pm - 9:00 pm
Cambridge Judge Business School, Trumpington Street
Cambridge, CB21AG United Kingdom

Genomic medicine is changing our world. The rapid decrease of the price of DNA sequencing has opened up numerous new possibilities, and is starting to enter clinical practice. However, even though we understand the genetic causes of 50% of rare diseases, early diagnostics remains a challenge. In the UK, it still takes an average of 6 years and visits to 8 doctors to get a diagnosis, and many people never get an answer at all. By scanning through entire genomes…

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September 2015
£20 - £95

CRDN Summit 2015

September 14, 2015 @ 9:00 am - 6:00 pm
Cambridge Judge Business School, Trumpington Street
Cambridge, CB21AG United Kingdom

Cambridge Rare Disease Network is holding its first annual conference, the Cambridge Rare Disease Summit 2015, at the Cambridge Judge Business School. We’re bringing together 150 key stakeholders to debate how to best address the huge social and therapeutic unmet needs around rare diseases. Come and join us and add your thoughts, ideas and questions to the day. Themes include: Alternative Funding Strategies New Rare Disease Initiatives on the Horizon the Potential of the Cambridge Cluster Engaging with Pharma. We…

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March 2016

Rare disease nursing in Cambridge

March 17, 2016 @ 6:00 pm - 9:00 pm
Cambridge Judge Business School, Trumpington Street
Cambridge, CB21AG United Kingdom

Is there a need for a rare disease home nursing service? Join our debate. Join us on Thursday 17 March to share your views, ideas and solutions at an event chaired by Alastair Kent, Director of Genetic Alliance UK, and hosted by the Cambridge Rare Disease Network.

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October 2016

CRDN Summit 2016

October 25, 2016
Robinson College, Cambridge, United Kingdom

Following the sell-out success of its first summit in 2015, the Cambridge Rare Disease Network is once again bringing international leaders and local experts together in Cambridge to bridge the gap between research, industry, business and patient groups.

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February 2017
Free

Rare Disease Day Lecture and Networking Event – 28 Feb 2017

February 28 @ 6:00 pm - 9:00 pm
Cambridge Judge Business School, Trumpington Street
Cambridge, CB21AG United Kingdom

Join us to celebrate the 10th Rare Disease Day on 28 Feb 2017 – Be inspired, network, collaborate

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June 2017
Free

Parachute Jumping for CRDN

June 4
UK Parachuting Beccles Airfield, Beccles, Norfolk NR34 7XD United Kingdom

Six incredible ladies, Helena Baker, Zoe Napier, Emily Mortimer, Lisa Griffin, Caroline Churn and Juliette Newton will be parachute jumping for CRDN on the 4th June!! We’ll be there to cheer them on and watch them fly at Beccles Airfield, Norfolk. Please help our courageous ladies achieve their £1,800 fundraising target by donating through Helena’s Just Giving page, Emily’s Just Giving Page and Zoe’s Just Just Giving Page So why CRDN?   Helena Baker is Vice President of the Nursing Medical Research Network and…

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August 2017

Running the 100 mile North Downs Way for CRDN

August 5 - August 6
FARNHAM IN THE SURREY HILLS TO ASHFORD IN KENT,

Chris Cawthorn from Trailfinders in Cambridge is running an incredible 100 miles along the North Downs Way in August to raise money to enable us to offer more activities to our Unique Feet rare disease community group. This is an incredible feat and we are truly humbled by his efforts and generosity. Chris tells his incredible running story  “ I never really intended to run this far (does anyone?) but after doing my first marathon in Hong Kong back in…

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October 2017
£25 - £175

Cambridge Rare Disease Annual Summit – Oct 23 2017

October 23 @ 8:30 am
Robinson College, Cambridge, United Kingdom

Following the success of our 2 previous summits the Cambridge Rare Disease Network is pleased to announce our 3rd annual International Rare Disease Summit. Venue: Robinson College, Cambridge will be hosting our event on 23rd October 2017 Costing: tiered pricing with early bird tickets and discount tickets for patients and patient groups, students and start-ups. This day long event seeks to create a forum that brings together patient groups, healthcare, academics, researchers, biotech companies, and the pharmaceutical industry in a…

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