Venue: The Light, Friends House, 173-177 Euston Rd, Kings Cross, London NW1 2BJ
Time: 10am to 4.00pm
Help make our Rare Diseases Patient Day a success!
The day is a joint collaboration between NIHR Cambridge Biomedical Research Centre and NIHR BioResource for Translational Research. The aim of the day is provide insight and training in aspects of Rare Diseases research, as well as information-gathering and networking opportunities.
Who will be speaking and facilitating on the day?
See full programme details Patient Day Agenda
Attendees will select an individual session to attend in the morning and a different session in the afternoon.
Session 1- Social Media
Session 2- Working with Industry
Session 3 – Genomics
Session 4- Data and Research
Jo Balfour from Cambridge Rare Disease Network will be facilitating a lunchtime discussion session exploring how Rare Disease groups can work with young people in their respective disease areas. Come and join the conversation!