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Free

March 21 @ 10:00 am - 4:00 pm

NIHR ‘Think Research’ Rare Disease patients Day

 

Venue: The Light, Friends House, 173-177 Euston Rd, Kings Cross, London NW1 2BJ

Time: 10am to 4.00pm  

Help make our Rare Diseases Patient Day a success!

The day is a joint collaboration between NIHR Cambridge Biomedical Research Centre and NIHR BioResource for Translational Research. The aim of the day is provide insight and training in aspects of Rare Diseases research, as well as information-gathering and networking opportunities.

Who will be speaking and facilitating on the day?

See full programme details Patient Day Agenda

Attendees will select an individual session to attend in the morning and a different session in the afternoon.

Session 1- Social Media

Session 2- Working with Industry

Session 3 – Genomics

Session 4- Data and Research

Jo Balfour from Cambridge Rare Disease Network will be facilitating a lunchtime discussion session exploring how Rare Disease groups can work with young people in their respective disease areas. Come and join the conversation!

Details

Date:
March 21
Time:
10:00 am - 4:00 pm
Cost:
Free
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Website:
https://cambridgebrc.nihr.ac.uk/nihr-think-research-rare-diseases-patient-day/

Organisers

NIHR Bioresource for Translational Research
NIHR Cambridge Biomedical Research Centre

Venue

The Light, Friends House
173 - 177 Euston Road, Kings Cross
London, NW1 2BJ United Kingdom
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Website:
https://cambridgebrc.nihr.ac.uk/nihr-think-research-rare-diseases-patient-day/