CCN Rare Disease Nurse Network. PhD Student University of Cambridge
Saakshi is a PhD candidate in Medical Sciences at MRC-Cancer Unit at the University of Cambridge.
She has worked as part of the Cambridge Consulting Network, commissioned by the Cambridge Rare Disease Network, a team of 5 consultants to establish the feasibility, cost, and operational requirements of a telemedicine pilot program for rare disease patients in Cambridge, and later on a UK wide scale. They performed extensive research on existing telemedicine pilot studies carried out worldwide, contacted key opinion leaders in the field of healthcare, telemedicine technologies and data privacy and designed an exhaustive survey to understand needs and habits of Rare Disease patients.
Following analysis of survey data to determine key operational requirements and potential models for the pilot, the team has now executed cost analysis to conclude the potential funding required to setting up a telemedicine pilot.
Saakshi and colleague Natalie Rebeyev have independently taken the project ahead with CRDN and are planning a business model for the Telemedicine Pilot study with 2 NHS hospitals and are currently applying for funding