Dr. Ségolène Aymé

Dr Segolene AymeDr. Ségolène Aymé is a medical geneticist, founder of Orphanet and chair of the Topic Advisory Group on rare diseases at the World Health Organization.

She chairs the European Union Committee of Experts on Rare Diseases and is the editor-in-chief of the Orphanet Journal of Rare Diseases (OJRD). Ségolène is coordinator of the SUPPORT-IRDiRC project and is a member of the Scientific Advisory Board of RD-Connect.