Alastair Kent OBE


Chair of CRDN, Chair of Rare Disease UK and Ambassador for Genetic Alliance UK

Alastair was Executive Director of Genetic Alliance UK,  the national umbrella group for patient organisations supporting those with all types of genetic disorder, for over 20 years. He has recently moved to a new role as Ambassador for the organisation.

He is also Chair of Cambridge Rare Disease Network and Rare Disease UK, the multi-stakeholder campaign that works to improve services and support for those with rare diseases. As Director, Alastair saw  Genetic Alliance UK grow into a respected and influential advocate for patients and families with genetic diseases in health policy, health care delivery and biomedical research and development arenas in the UK and internationally.

He is frequently asked to speak at conferences and symposia, and is a member of a number of national and international committees and working parties, and co-chairs the UK Rare Disease Policy Board for the four Health Ministers of the UK.

Alastair was awarded the OBE for services to healthcare in 2011.