Karen Harrison

Endocrine Awareness Project manager, ALD Life


Karen is the Endocrine Awareness Project manager for the UK charity ALD Life, who support patients and their families who are living with a diagnosis of adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN).

ALD is an X-linked hereditary condition which causes demyelination of the brain, which if not diagnosed and treated in a timely manner causes severe disability.

There are several phenotypes of the condition with childhood onset cerebral ALD being the most severe, affecting boys between the ages of 4 and 10.

Karen is a carrier of ALD and have two affected sons, one who died aged 8.