Co-Founder and Executive Board Member of Emily’s Entourage, US
Emily Kramer-Kolingoff, a 31-year-old with advanced stage Cystic Fibrosis, is Co-Founder of Emily’s Entourage, a 501(c)3 that accelerates research for new treatments and a cure for Cystic Fibrosis, nationally recognized patient advocate and speaker.
Since 2011, Emily’s Entourage has raised over $2 million and led worldwide efforts to fast-track research and drug development on nonsense CF mutations like Emily’s.
Named a White House Precision Medicine “Champion of Change,” Emily has given talks at The White House, TEDx, University of Pennsylvania’s Annenberg School for Communication graduation, and Stanford University’s Medicine X, where she is an ePatient Advisor. Her story has been featured on CNN.com, People.com, Time.com, Yahoo Health, CBS’s The Doctors, and more.
Emily has a master’s degree in bioethics and certification in clinical ethics mediation from the University of Pennsylvania, where she also completed her undergraduate degree.