Daniel Lewi

The Cure & Action for Tay-Sachs (CATS) Foundation

Dan’s eldest daughter Amelie was diagnosed with Tay-Sachs in 2011 at 15 months of age.

Upon finding that there was no dedicated charity providing support for families affected by this disease he set set-up the Cure & Action for Tay-Sachs (CATS) Foundation with his wife Patricia.

Since the charity was launched, Dan has been able to grow The CATS Foundation so that it now offers a variety of services to its family members, including equipment, respite trips and funeral funding grants.

The charity was also recently nominated as the patient organisation for a clinical trial into Tay-Sachs using gene therapy and Dan is actively involved in this ground breaking work