Speakers

Following the sell-out success of its first summit in 2015, the Cambridge Rare Disease Network is once again bringing international leaders and local experts together in Cambridge to bridge the gap between research, industry, business and patient groups.

Avril Daly, Vice President of EURORDIS
Dr Andy Richard, Serial Biotech Entrepreneur
Dr Jonathan Milner, Founder of The Milner Institute, Director HealX Ltd, and Deputy Chairman Abcam plc
Dr Tim Guilliams, CEO of Healx and Founding Director of CRDN
Ben Howlett MP, Chair of All Party Parliamentary Group (APPG) on rare, genetic and un-diagnosed conditions
Dr Paul Tunnah, CEO and Founder of Pharmaphorum Media
Alastair Kent OBE, Director of Rare Disease UK and Genetic Alliance UK, incoming Chair of CRDN
Professor Patrick Maxwell, Reguis Professor of Physic and Head of the School of Clinical Medicine, University of Cambridge
Dr Nick Sireau, Chairman of AKU Society and Findacure
Dr Larissa Kerecuk, Rare Disease Lead at Birmingham Children's Hospital
Professor Stephen Jackson, Senior Group Leader and Head of CRUK Laboratories, Gurdon Institute
Dr Femida Gwadry-Sridhar, Founder and CEO of Pulse Infoframe Inc
Professor Lucy Raymond, Professor of Medical Genetics and Neurodevelopment, University of Cambridge
Dr Richard Scott, Clinical Lead for Rare Disease at Genomics England
Karsten R. Barton, Head of Department, Frambu - Centre for Rare Disorders, Norway
Dr Olivier Menzel, President and Founder of BLACKSWAN Foundation, Switzerland
Daniel Lewi, The Cure & Action for Tay-Sachs (CATS) Foundation
Dr David Pardoe, Associate Director & Head of Growth Projects at MRC Technology
Dr Gemma Chandratillake, Education and Training Lead for the East of England Genomic Medicine Centre
Emily Kramer-Kolingoff MBE, Co-Founder and Executive Board Member of Emily’s Entourage
Dr Birgitte Volck MD PhD, Head of R&D for Rare Diseases at GSK
Dr Alex MacKenzie, Care for Rare and Vice-Dean Research for the Department of Paediatrics at CHEO, Ottowa, Canada
Karen Harrison, Endocrine Awareness Project manager, ALD Life
Dr Lucy McKay, Founding member of Students4RareDiseases
Rebecca Stewart, Co-founder and Editor at Rare Revolution Magazine and Co-Founder of Teddington Trust
James Taylor, Independent Consultant, formerly Director Corporate Development, GSK
Julie Walters, Founder of Raremark
Lydia Meyer-Turkson, CEO of Locus Genetics