Round table of companies

This round table discussion, chaired by Dr Tim Guilliams, CEO of Healx and Kay Parkinson, CEO of CRDN, brings together a broad group of stakeholders to discuss the key issue of unmet therapeutic needs for the patients with rare diseases, to gain common understanding, agree next steps and find opportunities for collaboration.

  • Bringing all participants to a common understanding of issues and challenges of access to rare disease therapies.
  • How can the wide range of perspectives of all key stakeholder groups be brought together to begin to collaborate on issues and challenges surrounding patient access.
  • Establishing how these challenges should be addressed and if/how different approaches of these various stakeholders may need to be adapted to better serve the end goal of improving patient access to rare disease therapies.

Seats at this discussion are by invitation only. To express your interest in attending and for more information, please email info@camraredisease.org.