- What can Cambridge contribute to global efforts in rare disease research?
- Who’s leading the way in collaborative, innovative research, treatment and care for those with rare diseases?
- How can we put patients and their families at the centre of all discussions?
Hear from those leading the way in rare diseases at the Cambridge International Rare Disease Summit 2016.
Where: Robinson College, University of Cambridge
When: Tuesday 25 October 2016
Costs: tiered pricing, with discount tickets for patient support groups and students.
Following the sell-out success of its first summit in 2015, the Cambridge Rare Disease Network is once again bringing international leaders and local experts together in Cambridge to bridge the gap between research, industry, business and patient groups.
Anchored by powerful patient voices, this one-day conference will explore:
- international rare disease innovations
- new rare disease initiatives on the horizon
- innovations in health
- engaging and collaborating with pharma.
A wide delegate base, representing academia, healthcare, industry, business, patients support groups and more will allow delegates to explore potential collaborations and gain a broader understanding of opportunities in rare diseases.
Confirmed speakers include:
- Avril Daly, Vice President of EURORDIS
- Dr Andy Richards – Serial Biotech Entrepreneur and Chairman of Ixico
- Dr Jonathan Milner, Co-Founder and Chairman of Abcam
- Ben Howlett MP, Chair of All Party Parliamentary Group (APPG) on rare, genetic and un-diagnosed conditions
- Prof Patrick Maxwell, Regius Professor of Physic and Head of the School of Clinical Medicine of the University of Cambridge
- Dr Tim Guilliams, CEO of Healx and Founding Director of CRDN
- Alastair Kent, OBE, Director of Rare Disease UK and Genetic Alliance UK, incoming Chair of CRDN
- Dr Paul Tunnah, CEO and Founder of Pharmaphorum media
- Dr Nick Sireau, Chairman of AKU Society and Findacure
- Dr Olivier Menzel, President and Founder of BLACKSWAN Foundation, Switzerland
- Dr Alex MacKenzie, CARE for RARE and Vice-Dean Research for the Department of Pediatrics at CHEO, Canada
- Dr Larissa Kerecuk, Rare Disease Lead at Birmingham Children’s Hospital
- Karsten R. Barton, Head of Department, Frambu – Centre for Rare Disorders, Norway
SameButDifferent Photography Exhibition
We’re also thrilled to host the ‘Rare Project’ created by SameButDifferent: SameButDifferent uses the arts to raise awareness of disability and counteract prejudice. It encourages people to look beyond first impressions and provides signposting to support organisations. The aim of the Rare Project is to shine light on rare diseases and its impact on children.
Following the formal proceedings we will continue the conversation over drinks at Robinson College. We then invite you to attend our gala dinner in the Crausaz Wordsworth Building to close the evening.