In January 2018 CRDN visited the 2 day GenomicsFest at ExCel in London hosted by Front Line Genomics. We heard inspiring talks and made great connections for the future. It was exciting to see Rare Disease charities and individuals taking to the stage to share the importance of genomics in diagnosis and personalised treatment and to give the science a human side.
The Transforming Genetic Medicine Initiative have written a great blog about the patient centred focus of the festival which we share here. Read on to see how rare disease charities, individuals and advocates had their say…….
Thanks to http://www.thetgmi.org for allowing us to share their blog