DNA Digest – reflecting on the CRDN Summit 2017

Dec 4, 2017 | Events, Guest posts, Summit

Rare diseases are rare but rare disease patients are numerous. DNA Digest said “One of the most impressive parts of the program was patients presenting their posters.

Each person was suggested to share three wishes with the audience, regarding the future care of people with their conditions. Becoming more visible, recognised and connected was a unanimous wish of the patients”.

Click to read the whole article. 

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