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Through to the Finals!

        Havas Life Medicom a 'specialist led, unified communications agency delivering connected healthcare communications, informed through fresh insights, smart thinking and inspired ideas’ have been supporting CRDN pro-bono over the last year in creating...

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Parachute Jumping for CRDN

 Six incredible ladies, Helena Baker, Zoe Napier, Emily Mortimer, Lisa Griffin, Caroline Churn and Juliette Newton will be parachute jumping for CRDN on the 4th June! We'll be there to cheer them on and watch them fly at Beccles Airfield, Norfolk. Please help our...

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Running the 100 mile North Downs Way for CRDN

 Chris Cawthorn from Trailfinders in Cambridge is running an incredible 100 miles along the North Downs Way in August to raise money to enable us to offer more activities to our Unique Feet rare disease community group. This is an incredible feat and we are truly...

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Cambridge Rare Disease Annual Summit – Oct 23 2017

 Following the success of our 2 previous summits the Cambridge Rare Disease Network is pleased to announce our 3rd annual International Rare Disease Summit. Venue: Robinson College, Cambridge will be hosting our event on 23rd October 2017 Costing: tiered pricing with...

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Rethinking rare diseases: treat the whole patient

 Our CEO Kay Parkinson believes experts need to work together to address the unmet needs in rare disease research and treatment and abandon the siloed approach that fails patients and their families. Read her article her article from Pharmaphorum magazine here.Want TO...

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AKU Society on rare disease nursing

 Nurse Specialists provide expert advice related to specific conditions, providing specialist advice and psychological support for both the patient and family.   Patients consistently rate their Nurse Specialist as higher than other health professionals in terms of...

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Rare disease nursing in Cambridge: a debate

 With 1 in 17 Britons born with or developing a rare disease, and with medical advances offering exciting new treatments to extend the lives of rare disease patients, we need innovative new options in holistic, patient-centred healthcare - such as rare disease...

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CRDN receives Big Lottery funding

 Cambridge Rare Disease Network is pleased to announce that they have received Big Lottery funding. We are delighted to receive the support of the Big Lottery as this will ensure we develop our Network professionally and enable our work to raise awareness of rare...

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Prof Stephen Hawking to address summit on rare diseases

 In the lead-up to Jeans for Genes Day, Cambridge's best-known rare disease advocate Professor Stephen Hawking will address the inaugural Cambridge Rare Disease Summit, at the Cambridge Judge Business School on Monday 14 September. Professor Hawking was famously...

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If you have #lupus or another rheumatic and musculoskeletal disease please consider completing this research survey about how you use social media for health-related purposes. It will take approximately 20 minutes.

https://t.co/cmjo3DnUDK

We are already planning for this event. Keep an eye out and let's all get involved and help to raise awareness of Gaucher disease.
#IGD2018 #RareButNotAlone #RareStars #RareDisease #FridayFeeling

For all those new doctors graduating at this time - CONGRATULATIONS! 😆👏🎉 Remember as you go into clinical practice - Rare diseases are individually rare but together they're common. 1 in 17! https://t.co/VtZbFCXplu #graduation #Dr #Doctor #MedStudent #MedEd #DareToThinkRare

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