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CRDN trustee helps new mums learn genomics from home

 Dr Gemma Chandratillake, CRDN trustee and East of England Genomics Education Lead, attended the No Isolation AV1 avatar breakout workshop at the CRDN Summit 2017 in October. Like others attending she quickly began to see applications for the robot beyond its original...

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CRDN Summit 2017 – The Film

   We collaborated with Lucia Tambini,  film maker producing films for charities including Oxfam, Tourettes Action, SeeAbility and Walk the Walk, to capture the essence of our annual summit in 2017 and what it is about our city of Cambridge which offers great...

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DNA Digest – reflecting on the CRDN Summit 2017

 Rare diseases are rare but rare disease patients are numerous. DNA Digest said "One of the most impressive parts of the program was patients presenting their posters. Each person was suggested to share three wishes with the audience, regarding the future care of...

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Suzanne Morris – The Cluedo Patient Journey Poster Creator

   Blog article by Suzanne Morris, one of the creators of the Vasculitis UK patient journey poster.Want TO READ more RARE news?© Cambridge Rare Disease Network 2018Website designed and built by Suzanne Morris using WordPressRegistered Charity Number: 1166365Company...

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Jeans for Genes Day 22 September 2017

   Who's taking part in #jeansforgenes on Friday? We are and can't wait to see what our partners get up to Duxford Primary School Cambridge University Health Partners and Association of Medical Secretaries and Practice Receptionist. If you're down at Addenbrooke's...

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Join the CRDN on Jeans for Genes Day 22 Sept 2017

  Join the Cambridge Rare Disease Network on Jeans for Genes Day! Apply for your free fundraising pack to support Cambridge Rare Disease Network and Genetic Disorders UK. Did you know that half a million children in the UK are affected by a life-altering genetic...

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If you have #lupus or another rheumatic and musculoskeletal disease please consider completing this research survey about how you use social media for health-related purposes. It will take approximately 20 minutes.

https://t.co/cmjo3DnUDK

We are already planning for this event. Keep an eye out and let's all get involved and help to raise awareness of Gaucher disease.
#IGD2018 #RareButNotAlone #RareStars #RareDisease #FridayFeeling

For all those new doctors graduating at this time - CONGRATULATIONS! 😆👏🎉 Remember as you go into clinical practice - Rare diseases are individually rare but together they're common. 1 in 17! https://t.co/VtZbFCXplu #graduation #Dr #Doctor #MedStudent #MedEd #DareToThinkRare

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