Bringing Cambridge expertise to the world
For research, healthcare and those living with rare disease
Building a rare disease community in Cambridge
The Cambridge Rare Disease Network is a newly established charity working to build a regional community of people in Cambridgeshire to address the unmet needs of rare disease patients, their families and the professionals who work with them.
We do this through community activities, awareness raising events and closer collaborations with scientists and researchers developing new treatments.
Support our work
As a registered charity in the UK, we are grateful for the support we receive from our partners in industry and academia.
Help us develop a vibrant, informed and active regional rare disease patient community in Cambridge and share our expertise with the world.
THANKYOU TO OUR SUPPORTERS
News from CRDN
With 1 in 17 Britons born with or developing a rare disease, and with medical advances offering exciting new treatments to extend the lives of rare disease patients, we need innovative new options in holistic, patient-centred healthcare – such as rare disease specialist nurses. Current care options for rare diseases put the burden on the patient to navigate multiple specialists, cover expensive travel and potentially spend long spells in hospital. This results in missed diagnoses, missed opportunities for treatment and leads to higher healthcare … read more
Cambridge Rare Disease Network is pleased to announce that they have received Big Lottery funding. We are delighted to receive the support of the Big Lottery as this will ensure we develop our Network professionally and enable our work to raise awareness of rare diseases to grow.
In the lead-up to Jeans for Genes Day, Cambridge’s best-known rare disease advocate Professor Stephen Hawking will address the inaugural Cambridge Rare Disease Summit, at the Cambridge Judge Business School on Monday 14 September.