Bringing Cambridge expertise to the world


For research, healthcare and those living with rare disease


Building a rare disease community in Cambridge

Our mission

The Cambridge Rare Disease Network is a newly established charity working to build a regional community of people in Cambridgeshire to address the unmet needs of rare disease patients, their families and the professionals who work with them.

We do this through community activities, awareness raising events and closer collaborations with scientists and researchers developing new treatments.

Read more about our mission

Support our work

As a registered charity in the UK, we are grateful for the support we receive from our partners in industry and academia.

Help us develop a vibrant, informed and active regional rare disease patient community in Cambridge and share our expertise with the world.

Find out how you can support our work


News from CRDN

On 23rd October the rare disease community gathered in Cambridge for the Cambridge Rare Disease Network’s third annual summit. This day long conference is always a great opportunity for Findacure to meet up with the rare disease community on our own door step, and we were thrilled to be invited to speak on the day. Rather than give a blow by blow account of the day, Findacure’s CEO Rick decided that his blog for the week would highlight some of its major themes. … read more

Join the Cambridge Rare Disease Network on Jeans for Genes Day Apply for your free fundraising pack to support Cambridge Rare Disease Network and Genetic Disorders UK here Did you know that half a million children in the UK are affected by a life-altering genetic disorder? Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 22nd September, and to aachieve an … read more

Havas Life Medicom a ‘specialist led, unified communications agency delivering connected healthcare communications, informed through fresh insights, smart thinking and inspired ideas’ have been supporting CRDN pro-bono over the last year in creating communications materials for our annual summit. They have done a superb job of listening to our needs, working with our small team and the odd hours they keep due to other work commitments, and in designing high quality promotional and delegate materials. Havas Life Medicom entered CRDN’s Summit … read more