Bringing Cambridge expertise to the world
For research, healthcare and those living with rare disease
Building a rare disease community in Cambridge
The Cambridge Rare Disease Network is a newly established charity working to build a regional community of people in Cambridgeshire to address the unmet needs of rare disease patients, their families and the professionals who work with them.
We do this through community activities, awareness raising events and closer collaborations with scientists and researchers developing new treatments.
Support our work
As a registered charity in the UK, we are grateful for the support we receive from our partners in industry and academia.
Help us develop a vibrant, informed and active regional rare disease patient community in Cambridge and share our expertise with the world.
THANKYOU TO OUR SUPPORTERS
News from CRDN
We collaborated with Lucia Tambini, filmmaker producing films for charities including Oxfam, Tourettes Action, SeeAbility and Walk the Walk, to capture the essence of our annual summit in 2017 and what it is about our city of Cambridge which offers great opportunities to drive change in Rare Diseases. The theme of CRDN2017 was ‘Re-imagining the Patient Journey’ and we worked hard to give patients and patient groups a platform and voice at the event through the Patient Journey Poster Exhibition and … read more
On 23rd October the rare disease community gathered in Cambridge for the Cambridge Rare Disease Network’s third annual summit. This day long conference is always a great opportunity for Findacure to meet up with the rare disease community on our own door step, and we were thrilled to be invited to speak on the day. Rather than give a blow by blow account of the day, Findacure’s CEO Rick decided that his blog for the week would highlight some of its major themes. … read more
Join the Cambridge Rare Disease Network on Jeans for Genes Day Apply for your free fundraising pack to support Cambridge Rare Disease Network and Genetic Disorders UK here Did you know that half a million children in the UK are affected by a life-altering genetic disorder? Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 22nd September, and to aachieve an … read more