Bringing Cambridge expertise to the world


For research, healthcare and those living with rare disease


Building a rare disease community in Cambridge

Our mission

The Cambridge Rare Disease Network is a newly established charity working to build a regional community of people in Cambridgeshire to address the unmet needs of rare disease patients, their families and the professionals who work with them.

We do this through community activities, awareness raising events and closer collaborations with scientists and researchers developing new treatments.

Read more about our mission

Support our work

As a registered charity in the UK, we are grateful for the support we receive from our partners in industry and academia.

Help us develop a vibrant, informed and active regional rare disease patient community in Cambridge and share our expertise with the world.

Find out how you can support our work


News from CRDN

Six incredible ladies, Helena Baker, Zoe Napier, Emily Mortimer, Lisa Griffin, Caroline Churn and Juliette Newton will be parachute jumping for CRDN on the 4th June!! We’ll be there to cheer them on and watch them fly at Beccles Airfield, Norfolk. Please help our courageous ladies achieve their £1,800 fundraising target by donating through Helena’s Just Giving page, Emily’s Just Giving Page and Zoe’s Just Just Giving Page So why CRDN?   Helena Baker is Vice President of the Nursing Medical Research Network and … read more

Chris Cawthorn from Trailfinders in Cambridge is running an incredible 100 miles along the North Downs Way in August to raise money to enable us to offer more activities to our Unique Feet rare disease community group. This is an incredible feat and we are truly humbled by his efforts and generosity. Chris tells his incredible running story  “ I never really intended to run this far (does anyone?) but after doing my first marathon in Hong Kong back in … read more

Following the success of our 2 previous summits the Cambridge Rare Disease Network is pleased to announce our 3rd annual International Rare Disease Summit. Venue: Robinson College, Cambridge will be hosting our event on 23rd October 2017 Costing: tiered pricing with early bird tickets and discount tickets for patients and patient groups, students and start-ups. This day long event seeks to create a forum that brings together patient groups, healthcare, academics, researchers, biotech companies, and the pharmaceutical industry in a … read more