Bringing Cambridge expertise to the world


For research, healthcare and those living with rare disease


Building a rare disease community in Cambridge

Our mission

The Cambridge Rare Disease Network is a newly established charity working to build a regional community of people in Cambridgeshire to address the unmet needs of rare disease patients, their families and the professionals who work with them.

We do this through community activities, awareness raising events and closer collaborations with scientists and researchers developing new treatments.

Read more about our mission

Support our work

As a registered charity in the UK, we are grateful for the support we receive from our partners in industry and academia.

Help us develop a vibrant, informed and active regional rare disease patient community in Cambridge and share our expertise with the world.

Find out how you can support our work


News from CRDN

Join the Cambridge Rare Disease Network on Jeans for Genes Day Apply for your free fundraising pack to support Cambridge Rare Disease Network and Genetic Disorders UK here Did you know that half a million children in the UK are affected by a life-altering genetic disorder? Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 22nd September, and to aachieve an … read more

Havas Life Medicom a ‘specialist led, unified communications agency delivering connected healthcare communications, informed through fresh insights, smart thinking and inspired ideas’ have been supporting CRDN pro-bono over the last year in creating communications materials for our annual summit. They have done a superb job of listening to our needs, working with our small team and the odd hours they keep due to other work commitments, and in designing high quality promotional and delegate materials. Havas Life Medicom entered CRDN’s Summit … read more

Six incredible ladies, Helena Baker, Zoe Napier, Emily Mortimer, Lisa Griffin, Caroline Churn and Juliette Newton will be parachute jumping for CRDN on the 4th June!! We’ll be there to cheer them on and watch them fly at Beccles Airfield, Norfolk. Please help our courageous ladies achieve their £1,800 fundraising target by donating through Helena’s Just Giving page, Emily’s Just Giving Page and Zoe’s Just Just Giving Page So why CRDN?   Helena Baker is Vice President of the Nursing Medical Research Network and … read more